Psychiatric labels can be both helpful and confusing. In the light of the current DSM debate, guest blogger Fay Thomas writes about her struggle to hold onto a normal response to personal grief having been diagnosed with bipolar disorder some years ago.
|Being labelled bipolar |
casts a long shadow
'Are you suicidal?' asked the doctor, peering at me kindly as she offered tissues for my tears. I wanted to answer truthfully, but it felt difficult. I hoped the answer was no, because I would not have done anything to harm myself, but my mind was full of dark thoughts. So I answered no, which seemed dishonest, especially since I had failed to tell her my history.
As a much younger, highly-distressed woman, I was given a label of 'bipolar mood disorder type 1' to describe my see-sawing moods. They cycled between delusional elation and the depths of despair. Aged 28, I had made a serious attempt to kill myself which led to a traumatic series of hospitalisations. My memories of those years are grim, painful and still difficult to articulate. I believe some of the treatment decisions made on my behalf were not in my best interests. Incarcerated and robbed of my own voice and power, it would be hard to trust medics again, especially with my mental health.
Prior to my GP visit, it had been 23 years since I'd experienced serious mood deterioration. For thirteen of those, I had been medication-free - unusual for someone with the bipolar label. Recovery had been a long, hard slog which presented serious risks. It had meant doing my own reading and acting on my own hunches despite the warnings of doctors.
Only a few close friends and colleagues knew of my past. They said my history seemed surprising as it didn't fit with the person they knew. Some health professionals thought I may have been misdiagnosed, so hard was it for them to believe in recovery from serious mental illness.
But it had proved illusory to rest on my laurels. Recent life events had been titanically stressful and I was in trouble. In my years of respite from serious mood swings, I had been careful to moderate my life - to eat well, sleep well, nurture myself with good relationships and steer clear of destructive, unmanageable stress. But we can't always package up our lives as neatly as we would like. I had known that I was over-reaching myself, as I struggled to manage my difficult circumstances.
So it was a crushing blow to be in a GP's office admitting to being so depressed that I was struggling to function and experiencing near-total insomnia. I was scared to tell the GP my history. Might it spark events that would end in sectioning with its associated horrors?
The GP looked genuinely confused (and cross) when I refused anti-depressants. I knew it would be unwise for someone with my history to take them without a mood stabiliser. And SSRI's do not always perform well in research: demonstrating no benefit beyond placebo for moderate (ormild) depression.
However, I had a secret. I believed my sadness was a sign of health, rather than illness. It was a human reaction to life-altering events. I could temporarily blot it out, but the work of mourning could not be avoided. So the only prescription I accepted was for something to help me sleep. Based on the information that I'd given the GP, she reluctantly agreed to no further meds, provided I attended psychotherapy. I added to the prescription: mindfulness, good food, sunlight when I could get it, exercise and the love of good friends. My doctor had no problem with those.
I contacted a therapist, with whom I hoped to explore the impact of recent events. Like my doctor, she made it clear that she was concerned and considered me at risk. She encouraged me to tell my doctor about my past so she didn't have to.
This left me terrified and vulnerable. What I wanted was to understand why I felt as I did, without the dictates of the DSM, NICE guidelines or the pressures of my past. I wanted to be seen as understandably distressed, rather than a 'bipolar' and in need of a harsh regimen. I was willing to take whatever medications were needed, but only if really needed. But how would I know? I wanted to ask who the professionals were keeping safe - me, or themselves?
It is a serious question. Science is helpful in telling us about signs and symptoms, but healing is an art. There are those of us for whom the evidence base may not always be the primary thing.
I endured months of severe insomnia, and the gusts of profound sadness and anxiety that came with it were hard to bear. Nonetheless, staying attuned to my emotions has allowed me to process my grief. This may have been more difficult had I relied on anti-depressants, which could have further destabilised my moods. Clearly, my course wouldn't be right for everyone, and those experiencing severe depression may find such an approach impossible.
I wish I could have trusted the professionals around me, without the fears of sectioning and whatever else my label may have brought to bear. Experience had taught me that they would act to minimise risk. This speaks loudly to the prevailing culture of evidence based practice and how people's real needs can get lost in the formalities of medical care. I wonder if risk may sometimes be heightened as a result?
My experience also says something about the power of psychiatric diagnosis, and how its impact may never leave me. To realise that I will always be thought of as 'bipolar', no matter how many years of recovery might pass, has been tough. Nonetheless, I hope to beat my 23 year record of what the medics will inevitably write off as 'remission'.